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Showing posts from January, 2019

Colin's Condition - January 24, 2019

Immune Suppression  Step Down Medical Information:   Cyclosporine   January 24, 2019 Colin had his appointment with National Institutes of Health (NIH) to review the immune protocol and experimental medication on January 9, 2019.  A lot of medical information was shared with us concerning his  T cells  and tregs ( Regulatory T cell )  as well as his IgG ( Immunoglobulin G ).  Most of the information is too hard for us to understand completely, but we understand that doctors are tracking all of his numbers as well as his HHV-6 ( Human herpesvirus 6 ) reactivation. We were instructed to continue with his Prednisone (steroids) taper, or  "step down" as well as try a Cyclosporine step down. He was on 12.5 mg of Prednisone and 100 mg of Cyclosporine  First the steroid for two weeks, and then reduce the cyclosporine by only 25 mg off his evening dose. So, in Colin's morning the following day (January 10) I reduced his...

Colin's Condition - January 10, 2019

Prednisone Step Down Medical Information:   Prednisone / Steroids   January 9, 2019 Today we are back" home" living in the wounded warrior barracks (Tranquility Hall) at Walter Reed National Military Medical Center in Bethesda, MD Colin had his appointment with National Institutes of Health (NIH) to review the immune protocol and experimental medication yesterday.  A lot of medical information was shared with us concerning his T cells and tregs ( Regulatory T cell )  as well as his IgG ( Immunoglobulin G ).  Most of the information is too hard for us to understand completely, but we understand that doctors are tracking all of his numbers as well as his HHV-6 ( Human herpesvirus 6 ) reactivation. We were instructed to continue with his Prednisone (steroids) taper, or  "step down"  So, in Colin's morning dose today I reduced his  Prednisone  to 10 mg.   At the onset of his illness Colin was initially taking 125 m...

Happy New Year 2019

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Texas work and possible house hunting

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The Benson Ohana will be heading to Texas in a couple of weeks.... Checking out the area for work (JAFRA, Game Plan Media Events, Game Plan Local) and also to possibly move here when Colin retires. Starting and ending in Dallas (traveling through Waco, Austin, San Antonio, Houston and back to Dallas) ISO- Looking for friends and family and recommendations in Dallas, Waco, San Antonio and Houston, Texas! In a few short weeks I will be in Dallas for a JAFRA conference. Jan 16-19 staying in the Dallas area Laura Benson's Jafra Page Then, Colin will be joining me afterwards, so we can explore the area looking for a possible new home after his retirement. We will be in the area for another week checking out various local areas and neighborhoods. While traveling around the cities in the area I will be continuing to work with  Game Plan Media Events  and  Game Plan Local  as well as building up some new pages that I just started for local area...