Prednisone Step Down
Medical Information: Prednisone / Steroids
December 12, 2018
We recently took Colin to Orlando, Fl for convalescent leave for Thanksgiving break and time with our family and puppies.
We have returned to Walter Reed National Military Medical Center (WRNMMC) and National Institutes of Health (NIH).
We have returned to Walter Reed National Military Medical Center (WRNMMC) and National Institutes of Health (NIH).
The doctors have given instructions for another "step down" on Prednisone (steroids) beginning with tomorrow's dose.
Background:
Background:
At the onset of his illness Colin was initially taking 125 mg of steroids! That is a very high amount of steroids. He began taking this high dose back in April 2017. His body has suffered a lot of damage from long term high steroid use.
His last prednisone dosage of 15 mg will be decreased tomorrow (13 DEC 2018) to 12.5 mg.
Other concerns his doctors have are for his liver and bones.
He had an updated DEXA scan earlier this week.
Other concerns his doctors have are for his liver and bones.
He had an updated DEXA scan earlier this week.
Here is some information about tapering slowly from Mayo Clinic
Doctors have been attempting to slowly taper him off this high dose of steroids, but his body doesn't react well to medical changes.
This past year doctors have been tapering him off many of his immune suppressants in an attempt to replace them all with the experimental dose and use of XELJANZ XR (tofacitinib).
Medical Information: https://www.xeljanz.com
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