Morning after the first IVIG
Journal entry by Laura Benson — May 31, 2017
Colin's transfer took approximately six hours. Thankfully, he had no side effects and he was able to receive the entire transfer of donated antibodies. (It's too medically complicated for me to explain, but that is the reason it took so many hours. A lot of vital checks - every 15 minutes in the beginning, etc.)
The nurses let me stay for the first hour (beyond visiting hours). He should have two more transfers (one per day).
For information about the IVIG, I have pasted a few links to some articles below:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3548378/ (IVIG for DRESS syndrome)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2958184/ (IVIG for for SJS/TEN syndrome)
Colin also had a visit from Hematology yesterday and again this morning. The doctors will closely be monitoring not only his labs, biopsies, etc. but now ultrasounds of all of his organs and CT scans have been ordered for today. I will try to post again later.
Yesterday was a very long and exhausting (and painful) day for him.
Please continue to pray for him!
We know that God is working through Colin, because he is comforted knowing God is with him. Throughout the entire two months he has remained very positive and optimistic and so brave!
Journal entry by Laura Benson — May 31, 2017
Today... he's tired. Exhausted !!!
The energy left him as the day dragged on. He tried to move around and even got out of bed for a brief moment. That was great! But painful and exhausting for him.
He had a "bed bath" and his nurse and I carefully reapplied Aquaphor and specialized burn wraps to his legs, then wrapped them up again. He looks like a mummy.
He received flowers sent from his previous command, NAWCTSD in Orlando, Fl.
Thank you! Photo below (you can see Colin in the mirror if you look closely).
They certainly brightened his day and this room.
I helped prepare all of the photos that I have taken of him over the past two months for the doctors at Washington Hospital.
The dermatologist are presenting his case tomorrow.
The doctors were pleased he accepted the IVIG transfer successfully and said we should see a positive change in him anywhere from 7-10 days from now.
This evening he started Day 2 of IVIG
Thank you all for your prayers, we know He is listening and the Holy Spirit is comforting him in this very difficult and challenging time.
The energy left him as the day dragged on. He tried to move around and even got out of bed for a brief moment. That was great! But painful and exhausting for him.
He had a "bed bath" and his nurse and I carefully reapplied Aquaphor and specialized burn wraps to his legs, then wrapped them up again. He looks like a mummy.
He received flowers sent from his previous command, NAWCTSD in Orlando, Fl.
Thank you! Photo below (you can see Colin in the mirror if you look closely).
They certainly brightened his day and this room.
I helped prepare all of the photos that I have taken of him over the past two months for the doctors at Washington Hospital.
The dermatologist are presenting his case tomorrow.
The doctors were pleased he accepted the IVIG transfer successfully and said we should see a positive change in him anywhere from 7-10 days from now.
This evening he started Day 2 of IVIG
Thank you all for your prayers, we know He is listening and the Holy Spirit is comforting him in this very difficult and challenging time.
Colin is staying strong!!
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