Laura Burk Benson

Prednisone Step Down Medical Information:   Prednisone / Steroids   February 13, 2019 Colin had his appointment with National Institutes of Health (NIH) to review the immune protocol and experimental medication that we hope will replace all other immune suppression medicine today, February 13, 2019.   We were instructed to continue with his Prednisone (steroids) taper, or  "step down" and his doctors put a plan together that would cover the next few tapers. Today he is on: (Listing immune suppression medicine only) 10 mg of Prednisone  75 mg of Cyclosporine  1000 mg of Cellcept 10 mg of Tofacitinib First the steroid will be reduced (February 14) and then we will reduce the cellcept by 500 mg off his morning dose (February 28) and then hopefully is everything is going well and he is able to continue tapering on schedule we plan to reduce the steroids down to 8 mg (March 14) So, in tomorrow's medication I will...

This February (2019) we are still living in "Tranquility Hall" otherwise known as the Wounded Warrior Barracks on NSA Bethesda at the Walter Reed National Military Medical Center. We are really missing our family this month, so  I found some family photos to share in my blog.   First is Colin and our daughter, Cassandra at her Graduation , next is Colin and I at a Navy Ball in Orlando, FL, then Colin and I in Jacksonville, then the last photo is of our Son-in-Law, Kemsley and our Daughter, Alexandra