Monday, October 29, 2018

Gold Star Families to receive Patriot Pups at Walt Disney World

Patriot Pup has reached thousands of children in the central Florida area and now they are looking to expand across the United States.

Their mission is to teach patriotism to children by sharing the Patriot Pup book series in schools, book stores, and family fun events.

This December, they will be seeking corporate event sponsors to help raise funds for gifts for each Gold Star Child. This gifts will be given during a very special event in conjunction with The Gary Sinise Foundation Snowball Express Event.

This organization is dedicated to serving the children of our fallen military heroes, surviving spouses and our Gold Star families.

Every year The Gary Sinise Foundation / Snowball Express sends thousands of children of our fallen military heroes to Walt Disney World.

Patriot Pup has been invited to share during the story time event for opening ceremonies December 8th at Walt Disney Resort in Orlando.

They are seeking corporate sponsorship for 550 Patriot Pup stuffed animals to give to the Gold Star children who have lost their moms or dads while serving our country.



Saturday, October 27, 2018

Domestic Violence Awareness Month

Source:  National Day Calendar

Additional Information:  Some day I will feel comfortable sharing my own personal battle with domestic violence - when I'm ready.  Just know that I believe you and I've been there, and I survived.



NATIONAL DOMESTIC VIOLENCE AWARENESS MONTH


National Domestic Violence Awareness Month is an annual designation observed in October. For many, home is a place of love, warmth, and comfort. It’s somewhere that you know you will be surrounded by care and support, and a nice little break from the busyness of the real world. But for millions of others, home is anything but a sanctuary. The U.S. Department of Justice estimates that 1.3 million women and 835,000 men are victims of physical violence by a partner every year. 
Every 9 seconds, a woman in the U.S. is beaten or assaulted by a current or ex-significant other.
Here’s another shocking statistic: the number of U.S. troops killed in Afghanistan and Iraq between 2001 and 2012 is 6,488. The number of women that were murdered by current or ex-male partners during that same time frame is 11,766, according to the Huffington Post. That’s almost double the number of people that were killed fighting in war. People who are in an abusive relationship will stay with their partner for a number of reasons:
-Their self-esteem is totally destroyed, and they are made to feel they will never be able to find another person to be with.
-The cycle of abuse, meaning the ‘honeymoon phase’ that follows physical and mental abuse, makes them believe their partner really is sorry, and does love them.
-It’s dangerous to leave. Women are 70 times more likely to be killed in the weeks after leaving their abusive partner than at any other time in the relationship, according to the Domestic Violence Intervention program.
-They feel personally responsible for their partner, or their own behavior. They are made to feel like everything that goes wrong is their fault.
They share a life. Marriages, children, homes, pets, and finances are a big reason victims of abuse feel they can’t leave.
HOW TO OBSERVE
Use #DomesticViolenceAwareness to post on social media. Sometimes, people don’t know if they are really in an abusive relationship because they’re used to their partner calling them crazy or making them feel like all the problems are their own fault. Here are a few ways to know if you’re in an abusive relationship that you need to get out of.
  1. Your partner has hit you, beat you, or strangled you in the past.
  2. Your partner is possessive. They check up on you constantly wondering where you are; they get mad at you for hanging out with certain people if you don’t do what they say.
  3. Your partner is jealous. (A small amount of jealousy is normal and healthy) however, if they accuse you of being unfaithful or isolate you from family or friends, that means the jealousy has gone too far.
  4. Your partner puts you down. They attack your intelligence, looks, mental health, or capabilities. They blame you for all of their violent outbursts and tell you nobody else will want you if you leave.
  5. Your partner threatens you or your family.
  6. Your partner physically and sexually abuses you. If they EVER push, shove, or hit you, or make you have sex with them when you don’t want to, they are abusing you (even if it doesn’t happen all the time.)
HISTORY
Domestic Violence Awareness Month evolved from the “Day of Unity” held in October 1981 and conceived by the National Coalition Against Domestic Violence. The “Day of Unity” soon evolved into a week, and in October of 1987, the first National Domestic Violence Awareness Month was observed. In 1989 Congress passed Public Law 101-112, officially designating October of that year as National Domestic Violence Awareness Month. Such legislation has been passed each year since.
As this month comes to an end, the important discussion it brings to the forefront about domestic violence’s horrific repercussions should not.



Friday, October 26, 2018

Colin's Condition - October 26, 2018

Prednisone Step Down
Medical Information:  Prednisone / Steroids 

October 26, 2018
Today we are still living at Walter Reed National Military Medical Center (WRNMMC) and Colin is still under the medical care and immune protocol at National Institutes of Health (NIH).

The doctors have instructed me to "step down"  Colin's Prednisone (steroids) today.
At the onset of his illness Colin was initially taking 125 mg of steroids!  That is a very high amount of steroids.  He began taking this high dose back in April 2017.
He is down to 17.5 mg of steroids today, and believe me as I write this - we are so worried.  Each time we taper his steroids - he flares.  That may not sound like much medication, but he has been dependent on it for so long that it's extremely difficult for his body to make up the difference and recover when it's reduced.

Here is some information about tapering slowly from Mayo Clinic

Doctors have been attempting to slowly taper him off this high dose of steroids, but his body doesn't react well to medical changes.  

This past year doctors have been tapering him off many of his immune suppressants in an attempt to replace them all with the experimental dose and use of  XELJANZ XR (tofacitinib).

Medical Information: https://www.xeljanz.com

Saturday, October 6, 2018

The Annual Beirut Memorial Observance Ceremony

The annual observance to mark the 35th anniversary of the October 23, 1983 Beirut Bomb Bombing will be held at the Beirut Memorial on Tuesday, October 23, 2018 at 10:30 AM.


Image Source Beirut Memorial and Grove, City of Jacksonville, NC

This memorial site is dedicated to all U.S. servicemen that have lost their lives in Lebanon, 241 Marines, Sailors & Soldiers, on the morning of 23 October 1983 while conducting peace-keeping operations in Beirut Lebanon. 

"We could fight if we wanted to, but we didn't.  Our main mission was to protect the people of Lebanon." Northwoods Park Middle School shared in a presentation at school, Friday October 5, 2018.